Shane Burcaw and Hannah Aylward are married. The couple, who documented their interabled relationship on YouTube channel Squirmy and Grubs, exchanged vows and married in a backyard wedding ceremony on September 4.
What is Shane burcaw disability?
Burcaw has spinal muscular atrophy, a genetic disorder that causes wasting in muscles, and has used a wheelchair since he was 2 years old. He shared a photo of his wife showing off her new wedding ring.
Why is Hannah with Shane?
Their relationship started when Hannah reached out to the writer and public speaker after watching a documentary that ‘The Office’ actor Rainn Wilson produced about his life. In the email, she complimented Shane on his sense of humor and his writing before admitting that she thought he was very cute.
What is the life expectancy of a child with SMA?
SMA Type 1 is a life-limiting condition. Though it is not possible to accurately predict, for the majority of children (approximately 95%) life expectancy is less than 18 months unless pharmacological treatment is introduced.
What is the life expectancy of a child with SMA type 2?
Type 2 is an intermediate form of SMA. Children with this type may sit without support at some point but cannot walk on their own. Symptoms typically start between 6 and 18 months of age. Depending on the severity of symptoms, children with type 2 may have a normal life span.
What is wrong with Squirmy and Grubs?
Burcaw has spinal muscular atrophy, which causes skeletal muscle weakness. His condition requires him to use an electric wheelchair. … DSA decided to reach out to Aylward and Burcaw in large part because co-leader Thais Carrillo ’23 is a subscriber and fan of Squirmy and Grubs.
Is Shane Squirmy and Grubs?
Shane Burcaw and Hannah Aylward run a successful YouTube channel called Squirmy and Grubs, which currently has over 800,000 subscribers and 100,000,000+ views. Shane is the award-winning author of three books, and together they are working on a fourth.
Is SMA painful?
Overall, pain in this population of SMA patients appears to be comparable to that of people with osteoarthritis or chronic low back pain. Despite SMA patients being generally protected from severe pain, younger SMA patients do experience pain at heightened rates.
How common is SMA 1?
SMA Type 1 (Werdnig-Hoffmann disease) SMA type 1 is the most common form of the disease, accounting for an estimated 50% to 70% of all cases of childhood-onset SMA. It, too, is also an extremely severe form of the disease. (In general, the earlier SMA begins to manifest in a person, the more severe is the disease.)
Is SMA type 2 curable?
There’s currently no cure for SMA, but the Food and Drug Administration (FDA) has recently approved several new treatments for both type 1 and type 2 SMA, including innovative gene therapies, with many more potential treatments on the horizon.
Is SMA curable?
As yet, there is no complete cure for SMA. However, the discovery of the genetic cause of SMA has led to the development of several treatment options that affect the genes involved in SMA a gene replacement therapy called Zolgensma, and two drugs, called nusinersen (Spinraza) and risdiplam (Evyrsdi).
How effective is Zolgensma?
During the trial, approximately 91.7% of the evaluated patients were able to hold their heads erect, while 83.3% achieved the ability to sit without support for more than ten seconds, 75% for more than 30 seconds. Furthermore, 16.7% of patients were able to stand alone and walk with assistance.
Does folic acid prevent SMA?
Penn Study Finds Signs Folic Acid And Vitamin B12 May Lessen Some Ill Effects Of SMA. Summary: Scientists have found evidence suggesting that the severity of spinal muscular atrophy (SMA) may be ameliorated by common vitamins.
What does Zolgensma do?
Zolgensma is an SMN-enhancing therapy that works by replacing the function of the missing or nonworking SMN1 gene with a new, working copy of an SMN gene. A virus, AAV9, carries the replacement gene into the body. This virus infects the cells with the new DNA.
What are Interabled lovers?
An inter-abled relationship is a relationship with one person who is able-bodied and another who is disabled. … As a result of Shane’s disability, he is wheel-chair bound, but that doesn’t stop him or his wife from having a successful, happy and playful marriage.
What does Shane burcaw have?
I was born with a genetic disease called Spinal Muscular Atrophy, which is why I look like a spider that’s been stepped on a few times.
What is SMA Shane?
Shane has a disease called Spinal Muscular Atrophy (SMA), a genetic condition that causes a person’s muscles to weaken over time. Because of SMA, Shane requires help with most physical requirements of daily life, like eating, showering and going to the bathroom.
Why is Shane in a wheelchair?
Shane has spinal muscular atrophy, a genetic disorder that causes muscle weakness and wasting because of the loss of motor neurons, which control muscles. Since he was 2, Shane has been in a wheelchair.
What is the story behind squirmy and grubs?
We were doing some upcoming travel, and traveling with a disability is always rife with challenges, so we figured we should document it in our humorous tone. We named our channel Squirmy and Grubs, which are the (slightly embarrassing) nicknames that we gave each other early in our relationship.
Where do squirmy and grubs live?
Minnesota Squirmy and Grubs are Hannah Aylward and Shane Burcaw, a young couple living in Minnesota and documenting their life together for all the world to see.
